Current Environment:

Dollar-for-Dollar Match

Your gift will DOUBLE to help more kids heal. Donate Now.

Your visit

Family and sibling support

波士顿儿童Child Life Servicesprovides a variety of helpful materials for families and siblings of chronically ill children. We recommend downloading the following information sheets.

Psychosocial support team

Social work.Our clinical social workers have helped many other families of children with chronic illness. We recognize that your child's illness can impact their emotional, social, mental, and developmental health. Your social worker is available to provide support to you and your family related to a wide variety of concerns including:

  • coping with diagnosis, illness, or hospitalization
  • 疾病对家庭成员的影响
  • school or educational concerns
  • financial difficulties

Child life specialists.Child life specialists work to enhance patients' emotional, social, and cognitive growth during a hospital visit, taking into consideration each child's family, culture, and developmental needs. They use developmental interventions and play to help patients and families adjust to and understand their health care experiences. Please contact your Boston Children's social worker to obtain a referral to a child life specialist.

Mental health providers.Children and their families living with a chronic illness may benefit from having access to mental health care. Our team can help connect you with mental health professionals in your specific community or provide additional education to your mental health professional about midaortic syndrome and renovascular hypertension to better support your child's emotional, mental, and social health needs.

External resources for patients and parents

请注意，波士顿儿童医院，中期综合症和肾血管高血压中心都没有毫无保留地认可下面列出的地点的所有信息。这些链接作为资源提供。

Parents Helping Parentsmeets the needs of individuals and their families with any special needs, including illness, accidents, birth defects, neurological conditions, learning or physical disabilities, mental health issues, etc.

The Sibling Support Projectis the first national program dedicated to the lifelong and ever-changing concerns of millions of brothers and sisters of people with special health, developmental, and mental health concerns.

Facebook support groups

You can find various Facebook groups intended to serve as a place of support, connection, and information. Consider searching for groups related to your child's specific diagnosis or need.

Camps

The Center for Courageous Kids通过全年创造令人难忘，令人兴奋，娱乐，建立自尊心并且在身体上安全和医学上的健全的经验来提升危及生命的疾病的孩子。

Victory Junctionenriches the lives of children with serious illnesses by providing life-changing camping experiences that are exciting, fun, and empowering, at no cost to children or their families.
Baidu