Patient Resources |Overview
We understand that you may have many questions if your child has been diagnosed with an early-onset epilepsy. There are a number of support groups available for patients with epilepsy and their family members. The following websites provide additional information about specific epilepsy syndromes, genetic variants, services, and support:
Citizens United for Research in Epilepsy (CURE)
The Cute Syndrome Foundation (PCDH19 Epilepsy)
Epilepsy Foundation New England
Insieme per la Ricerca PCDH19
*Please note that neither Boston Children’s Hospital nor the Epilepsy Genetics Program at Boston Children’s Hospital unreservedly endorses all of the information found at the sites listed above.