Current Environment:

Meet Our Team

Our CDKL5 Center of Excellence is led by neurologistHeather Olson, MD, in Boston Children’s Division of Epilepsy and Clinical Neurophysiology. Also on the faculty of Harvard Medical School, Dr. Olson previously trained at Mayo Medical School and completed residencies and fellowships at Harvard Medical School/Boston Children's. She has received the Infantile Spasms Award from the Child Neurology Foundation and has multiple publications in the field of epilepsy genetics. She also participates in Boston Children’s Epilepsy Genetics Program and Fetal-Neonatal Neurology Program, broadening her expertise in managing neurologic challenges in children with CDKL5 mutations.

The team also involves physicians from a variety of specialties including: Neurology, Neuro-Ophthalmology, Orthopedics, Gastroenterology, Feeding team, and Genetics.

Attendings

Learn more aboutDavid K. Urion, MD, FAAN

Associate, Department of Neurology; Charles F. Barlow Chair in Neurology; Director, Education; Associate Director, Child Neurology and Neurodevelopmental Disabilities Residency Training Programs; Director, Behavioral Neurology Clinics and Programs; Co-Cha

Associate Professor of Neurology, Harvard Medical School

Learn more aboutElana M. Bern, MD, MPH

Co-Director, ARFID Program; Attending Physician, Division of Gastroenterology, Hepatology and Nutrition

Assistant Professor of Pediatrics, Harvard Medical School

Learn more aboutGena Heidary, MD, PhD

Ophthalmologist, Department of Ophthalmology; Director, Neuro-Ophthalmology Service, Director, Pediatric Ophthalmology Fellowship Program

Associate Professor, Harvard Medical School

Learn more aboutM. Timothy Hresko, MD

Director of Spine Research and Quality Improvement, Department of Orthopedic Surgery

Associate Professor of Orthopedic Surgery, Harvard Medical School

Learn more aboutJonathan Picker, MD, PhD

Director, Fragile X Program; Director, Pharmacogenomic Service; Assistant in Medicine, Division of Genetics and Genomics

Assistant Professor, Harvard Medical School

Speech-Language Pathologists

Learn more aboutKara Larson, MS, CCC-SLP

Director, Feeding and Swallowing Program; Speech-Language Pathologist; Clinical Coordinator, Department of Otolaryngology and Communication Enhancement

Learn more aboutJennifer Perez, MS, CCC-SLP

Clinical Coordinator, Feeding and Swallowing Program

Genetic Counselors

Learn more aboutLindsay C. Swanson, MS, CGC

Licensed Genetic Counselor & Clinical Research Manager, Department of Neurology

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